tag:blogger.com,1999:blog-4828359049548032059.post4437405963487496334..comments2024-03-16T07:35:53.410+00:00Comments on MY EDS JOURNEY: My journey living with PoTS MissClicky38http://www.blogger.com/profile/04819040857283012491noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4828359049548032059.post-12726512054725281672018-10-14T18:08:55.058+01:002018-10-14T18:08:55.058+01:00Yes it was a relief Pamela, even though it took a ...Yes it was a relief Pamela, even though it took a long time to receive it xxMissClicky38https://www.blogger.com/profile/04819040857283012491noreply@blogger.comtag:blogger.com,1999:blog-4828359049548032059.post-35774450388533581372018-10-14T18:07:20.183+01:002018-10-14T18:07:20.183+01:00Thank you Amy that would be great if you could sha...Thank you Amy that would be great if you could share this with your group. MissClicky38https://www.blogger.com/profile/04819040857283012491noreply@blogger.comtag:blogger.com,1999:blog-4828359049548032059.post-68908649268138950242018-10-12T12:48:19.517+01:002018-10-12T12:48:19.517+01:00What a relief to get a diagnosis! I hope that you ...What a relief to get a diagnosis! I hope that you start to find better health down the road and that your POTS journey is a lighter one than many suffer. Hugs! oxoxPamelahttps://www.blogger.com/profile/02024860620752299971noreply@blogger.comtag:blogger.com,1999:blog-4828359049548032059.post-66506795059818280022018-10-12T12:45:59.864+01:002018-10-12T12:45:59.864+01:00Thankyou for sharing this! I don't have Pots, ...Thankyou for sharing this! I don't have Pots, but I run a support group where many do, and I'm definitely going to share this with them! Thankyou for raising awareness for this!<br /><br />http://www.chronicalsunflower.co.ukChronical Sunflowerhttps://www.blogger.com/profile/13908980005938533463noreply@blogger.comtag:blogger.com,1999:blog-4828359049548032059.post-52980128709688748792017-02-14T17:28:08.948+00:002017-02-14T17:28:08.948+00:00Thank you Claire, I am not finding much improvemen...Thank you Claire, I am not finding much improvement on Midrodrine but seeing specialist in April. I am lucky I have not actually fainted but get very tired, short of breath, pooling, rapid heart rate and nausea.MissClicky38https://www.blogger.com/profile/04819040857283012491noreply@blogger.comtag:blogger.com,1999:blog-4828359049548032059.post-1299413931120657892017-02-12T17:05:39.147+00:002017-02-12T17:05:39.147+00:00Emma, this is a great article which I will be shar...Emma, this is a great article which I will be sharing with friends and family - so similar to my experiences. I am definitely getting worse at the moment, but at the beginning of the drugs journey!! Fluids, fludrocortisone & compression tights have made little difference. Don't know about you, but every time I go over I dislocate something - today I feel like I've been stretched on a rack after a couple of faints and shoulders & hip going! Thank you for this - I will share, Claire xClaire(PainPalsBlog)https://www.blogger.com/profile/05081532485059372452noreply@blogger.comtag:blogger.com,1999:blog-4828359049548032059.post-58676662094509820872017-02-05T13:11:07.571+00:002017-02-05T13:11:07.571+00:00sorry to hear you may have this as well but not be...sorry to hear you may have this as well but not been diagnosed. mine had never heard of it either. It is not right that we have to tell these Dr's what to do. I may have mast cell as well but not sure yet.MissClicky38https://www.blogger.com/profile/04819040857283012491noreply@blogger.comtag:blogger.com,1999:blog-4828359049548032059.post-22464867734265204682017-02-05T13:06:37.591+00:002017-02-05T13:06:37.591+00:00Thank you Donna, it is a relief but so difficult t...Thank you Donna, it is a relief but so difficult to live with. MissClicky38https://www.blogger.com/profile/04819040857283012491noreply@blogger.comtag:blogger.com,1999:blog-4828359049548032059.post-57872662336592258092017-02-05T10:45:00.955+00:002017-02-05T10:45:00.955+00:00It must be a relief to finally have your diagnosis...It must be a relief to finally have your diagnosis and know for sure what is going on. POTS is such a difficult illness to live with and one misunderstood by many so thank you for sharing your experience.<br /><br />Donna<br />http://www.februarystars.co.uk Anonymoushttps://www.blogger.com/profile/00852061577497772882noreply@blogger.comtag:blogger.com,1999:blog-4828359049548032059.post-59861287804436289042017-02-04T03:49:36.229+00:002017-02-04T03:49:36.229+00:00Thanks for sharing all of your symptoms and experi...Thanks for sharing all of your symptoms and experiences. I'm pretty sure I have PoTs, but don't have a doctor to diagnose it. I need a new GP, because mine has never heard of pots. I do have EDS, Mast Cell and autoimmune problems. Lisa Ehrmanhttps://www.blogger.com/profile/10161940293621569520noreply@blogger.com