MY EDS JOURNEY
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05/02/2019

Bladder problems in hEDS and Tips how to manage them

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Bladder Dysfunction can affect anyone at any age but those with hEDS seem to be more susceptible, possibly due to differences in ...
9 comments:
11/08/2018

My Life on Home Artificial Nutrition 1 Year On

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I can't believe it was a year ago that I shared my post on living with a feeding tube for HanWeek2017 and here I am again sharing ...
24/07/2018

My long journey to getting a Diagnosis

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When I was a baby the midwife noticed that my hips didn't rotate properly when she did my checks however I don't think it caus...
5 comments:
22/05/2018

EDS Awareness Month May 2018

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What is EDS Awareness Month? Every year in May, people with EDS all over the world raise awareness of the condition by taking part i...
1 comment:
29/01/2018

New Year Health Update

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Happy New Year to you all, I know it probably seems strange me saying this when we are nearly in Febru...
1 comment:
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