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Displaying all 45 posts
POST TITLEPOST DATELABELS
Bladder problems in hEDS and Tips how to manage them2019-02-05
My Life on Home Artificial Nutrition 1 Year On 2018-08-11
My long journey to getting a Diagnosis2018-07-24Being diagnosed with hEDS
EDS Awareness Month May 20182018-05-22EDS Awareness month
New Year Health Update2018-01-29New year health update
10 Tips how to Pace over Christmas with a Chronic Condition2017-12-16Pacing over Christmas
2017 Christmas Gift Guide for those with chronic conditions2017-12-04Christmas Gift Guide
Why Christmas this year will be different from any other2017-11-27christmas, chronic condition
What is Occupational Therapy? 2017-11-11assessment, community, equipment, Occupational Therapy
10 things to do when bedbound to pass time2017-10-30activities, bedbound
What do I have in my pain Toolkit?2017-10-21chronic pain, Pain Toolkit, self management
How to cope with Loss in Chronic Illness2017-09-05Loss in chronic illness
My Life Living With Home Artificial Nutrition2017-08-08Home Artificial Nutrition, Tube feeding
10 Tips for coping while in the waiting room2017-07-17coping, tips, waiting room
Find out about my experience on a reablement unit with a chronic condition2017-06-26
Health update-Blogging from my hospital bed part 2&32017-05-21Health update, Hospital
10 Tips to surviving a long hospital stay2017-04-12Tips to surviving a long hospital stay
Health Update- Blogging from my hospital bed part 12017-04-10Health update, Hospital
How to set Achieveable Goals with a chronic condition2017-03-15Achievable Goals, chronic condition
Rare Disease Day February 28th2017-02-27Rare disease
What is Autonomic Testing? 2017-02-15Autonomic Testing, Pots
Gastric Emptying test 2017-02-11Gastric, Testing
My journey living with PoTS 2017-01-30Pots
2017-01-30
What is PoTS?2017-01-23Autonomic Nervous system, Pots
2014 RNOH Inpatient Rehab Pain Management Programme 2017-01-13Pain Management
My shoulder Arthrogram injection with MRI2016-12-21shoulder Arthrogram, Tests
What is the relevance of the zebra in EDS2016-12-20EDS, zebra
10 Christmas gift ideas for someone with EDS2016-12-12Christmas gifts, EDS
How to get the most from your Medical Consultation2016-11-24Medical Consultation
6 Techniques to help cope with EDS Flare-Up's2016-11-16coping techniques, EDS, Flare-up, pain
Hydrotherapy or land Physiotherapy in helping Manage EDS pain2016-11-07Hydrotherapy, Physio, Therapy
Why is it important to pace with chronic pain?2016-10-17Pace, Pain Management
What motivates you?2016-10-16
What is plantar fasciitis?2016-09-29Plantar Fasciitis
5 Gadgets/Aids I couldn't live without2016-09-18equipment, Gadgets/Aids
2016-08-23
COPE PAIN MANAGEMENT PROGRAMME2016-07-09pain, Pain Management, self management
Hypermobility Information Session 2016-05-14
Gastroenterology Testing - Royal London Hospital2016-05-12Gastro, Testing
The day I received my diagnosis2015-09-12EDS, hypermobility, Prof Grahame, rehabilitation
Pots Self Management Clinic2015-09-05
POTS Diagnosis2015-07-09
Gastroscopy Investigation2015-06-23
WHY THE ZEBRA?2015-06-22
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