What is EDS Awareness Month?
Every year in May, people with EDS all over the world raise awareness of the condition by taking part in various events to spread the message and help raise money. Some will do weird and wonderful things depending what they are able to while others may dress up in zebra clothing or paint their face with zebra stripes. The reason for this is to make people understand that having EDS is more than just "being bendy" which a lot of people seem to think when you say what you have and also to make the medical professionals realise how complex the condition is.